Inform with care: ethics and information in care for people with dementia

Barnes, Marian and Henwood, Flis (2015) Inform with care: ethics and information in care for people with dementia Ethics and Social Welfare, 9 (2). pp. 147-163. ISSN 1749-6535

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Abstract

Good care is often positioned as a natural by-product of the widespread availability of good information ( association through empirical investigation of the information in the context of dementia care. It combines critiques of the care with insights from the epistemological dimension of care ethics to argue that information is better understood as relational practices of care involve the mobilisation and negotiation of different types of knowledge that are specific to caring relationships and contexts. The argument is illustrated through the three cases of caring relationships taken from a qualitative evaluation of an information and support course for carers of people with dementia. These cases highlight the specificity of caring relationships and the very different consequences of introducing new forms of knowledge into each relationship and provide evidence for the need for a paradigm shift where the idea of informing to care is replaced by a process of informing with care. In the former, information is understood as separate and outside of care, while nevertheless acting upon it to produce care; in the latter, information is understood as inextricably linked to care (with care) but not in any predetermined or uni-directional sense. The paper identifies key interlinked components of the‘inform to care’). This paper contests this–care relationship‘informatisation’ of‘situated knowledge’ and that the‘inform with care’ approach derived from the cases discussed.

Item Type: Journal article
Additional Information: This is an Accepted Manuscript of an article published by Taylor & Francis Group in Ethics and Social Welfare on 05/05/2015, available online: http://www.tandfonline.com/10.1080/17496535.2014.969753
Uncontrolled Keywords: Information; Relational Care; Ethics; Dementia; Family Carers; England
Subjects: L000 Social Sciences > L400 Social Policy > L410 UK Social Policy
L000 Social Sciences > L300 Sociology > L310 Applied Sociology
DOI (a stable link to the resource): 10.1080/17496535.2014.969753
Depositing User: Converis
Date Deposited: 15 Sep 2015 03:01
Last Modified: 05 May 2016 00:38
URI: http://eprints.brighton.ac.uk/id/eprint/14286

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